I Read to Dr. DeSantis

I read one of my books Patch Land to Dr. DeSantis, and she loved it. I also read her a letter of what I wanted to accomplish by writing these books. She liked what I was trying to do with the books, the concept of being able to use it as a tool for children struggling to patch and bring awareness to Amplyopia, or for any child having to patch for other medical reasons, and for the ones that don’t have to patch, it would educate people at the same time. Patch Land books are wonderful books full of adventures and problem solving. A child gets to escape for awhile how wonderful is that!

The forward letter for the books

Doctor DeSantis Excited!

Doctor Desantis was so excited to tell us that there was a small improvement the last couple of visits. She said it might not be a big improvement but like she says we will take it. I just gave her a big hug! It was so nice to finally hear those words. I had told Dr. DeSantis about my books while ago, and at one appointment I brought my books with me and asked her if I could read one of them to her and If I could also really quick read her what I wanted to accomplish by writing these books. The wonderful Doctor and person that she is said yes. I was really excited and nervous at the same time.

Reading the Books to Dr. DeSantis

Preston was showing a little improvement

I wrote in my books that Preston started to show improvement and he really did! I was so happy to hear such wonderful news From Doctor DeSantis at one of his eye appointments, And to know that by writing these children’s books Patch Land have contributed a little to that. I loved the fact that Preston was able to use it as one of his a tools to patch.

The Doctor was very excited!

Reading to Preston's 1st grade class

I did go to Preston’s class that following week. I read to the children in small groups, for two days that week. They gave me there feed back, and I answered question’s for them. Than I started too notice they were able to understand why Preston had to patch and wear glasses. I could see that Preston had some self confidents when the children told him how cool that his mother wrote books about him and that they really liked his dog Beau in the books. It was also nice to see that the children could not wait to see what was going to happen next. Some of the children also asked Preston some questions, and you could see Preston’s face just light up! He was no longer embarrassed, and at that point I realized I needed to get these books published and out there for people to read, and hopefully be able to help many other children with low vision, and for the children that don’t have low vision, That it would help them understand why there are children out there in the world that do, and at the same time enjoy these wonderful adventure books.

“The books really did help Preston”

My Personal Journey as Preston's Mom

I started writing the books and noticed Preston really took an interest to it. He was the main character and loved the whole process with me. He told his teacher all about the books. Preston’s teacher had asked me if I would like to come in to his 1st grade class and read the Patch Land books to the children. Of course I said yes! That it would be such a great opportunity for me to get feed back from the children, and see if I needed to revise the books a little bit more, because as we know they will tell you the truth if you want to hear it or not.

The Day I Went to Read Patch Land To Preston’s Class

Race for the cure 2008

Race for the Cure 2008

Today was a very special day! Sunday Oct. 5 Race for the cure. I wanted to add something different to my personal journey. I support the
www.komendenver.org
My mom passed away several years ago from breast cancer. I feel that we were cheated from a wonderful mother, and a grandmother that my children and nieces have never had a chance to meet. I miss her very much! She was a very kind and warm hearted person.
My mother even on her last days here on this earth would wake up with a smile and say please don’t be sad because that will make me sad! She was a very strong person she suffered with the horrible disease Cancer. One day she left us to be in a much better place where she would no longer suffer. I was happy that she was no longer suffering and in pain but, in a very selfish way that did not stop me from painfully missing her and wanting her to be here with us!
I started to write down my feelings and would also write some poems after she had passed away; I guess that is how I would deal with my pain. Years later that is how I am dealing with my son’s eye issues and also to make a difference in this world. I guess what I am saying I never thought that I would be writing children’s books. Looking back and remembering how I use to stay up at night and cry and write at the same time was a wonderful way to release my pain. I am doing the same thing now with my son Preston and also helping other children deal with there low vision. I have lost what I wrote about my mom so many years ago, but it is still in my heart.
This year I decided to put a team together in the memory of my mother. My mother’s name was Paquita, so I decided to call our team
“Paquita’s Earth Angles”. I am now a team captain. We had 18 people that joined my team; some have walked before some have never walked for the cure. I was so happy walking with so many people on our team. For my first year of putting a team together not to bad. It was a wonderful feeling! I am so grateful for everyone that was out there today and not just my team members, we were all there for the same purpose to find a cure for breast cancer. Today was a day of people from all walks of life, different political views all that was set aside to raise money to help stop this horrible disease, breast cancer! I wanted to thank my team so much for getting up early and getting pledges, and hopefully next year we will even do better!. If you see our team out there next year please say hi! I guess it is time to rest my tired feet till next time.
Good Night.

My personal Journey as Prestons mom

Preston had to start patching his good eye so we could make his weak eye stronger. Unfortunately he could not see since his vision was so poor with corrective lenses it was a 20/80 in his left eye. It was a struggle everyday for him to patch. We tried everything to get him to patch.
We went back to see Dr. Desantis and she had informed us that his eye was not getting better and we need to work on this so the next visit we deicide to dilate his eye every other night.
He had just started Kindergarten and it was a good thing that he is a sharp young boy. He was having a little bit of difficulty seeing the letters poor guy.
After a year of dilating his eye and not seeing any real progress I told the Doctor we did not want to dilate his eye anymore it was interfering with his learning and no real progress she agreed.
So we ordered these really cool new eye patches that don’t stick to his eye lashes. We did incentives so he would patch. He would have to patch for a certain amount of time before we would give him a prize. My mother-law is wonderful, Her support and love, She sends him a care package and he gets new goodies to patch for and she writes him a note with each package giving him words of encouragement.
We are still not seeing the improvement we need I would catch him peeking when he would patch. I felt it was still a struggle and only seeing very little improvement.
My heart would drop every time we went back to see his Doctor and we would hear the words that there was not much improvement.
We knew he had to put allot more effort into patching and keep it going strong. Patching does work! you just have to make sure that he is not cheating and peeking. While we were hearing the not so good news I thought
I would ask the doctor if he was a little legally blind in his left eye she said not a little but he is legally blind in his left that is why we need to really work on it. If he were ever to hurt his other eye he would never be able to drive unless we could get the other eye stronger. I did not want to hear that and now I was really determined to do something else for Preston. On our way home it hit me I am going to write a children’s book on this topic and see if I can help Preston and other children through this process and bring awareness to Amblyopia. It is the # one cause in blindness in children if undetected.

This is when my journey started writing children’s books!