Monday, May 18, 2009

Explanation from Preston’s Eye Doctor

Explanation from Preston’s Eye Doctor

I had asked Preston’s doctor to please explain why he needed to start the Atropine again. Yorrk was not with me during this appointment so; she took the time out of her weekend to write an email about Preston’s eye condition that way Yorrk could have a better understanding about It.
Seeing this email is a little bit hard to look at, and realize his challenges. I also look at it and say Wow we have made great progress! And will continue too!

Let me see if I can clarify the reason I suggested trying Atropine again. My thoughts are a little easier to organize in writing and then your husband can have access to the information as well.

As you know, there are essentially 3 components to Preston's eye issues:

1. Refractive error. This refers to the shape of his eyes and is treated with his glasses.

2. Amblyopia- This refers to the shut down of the pathways from the left eye to the brain. It is being treated with patching. Sometimes we also treat amblyopia with atropine drops, which blur the vision at near in the better eye, thus causing the weaker eye to be used more. The best treatment, however, is to patch the better eye, occluding it completely to force use of the weaker eye.

3. Strabismus - This refers to the misalignment of the eyes. Early on, Preston's left eye crossed in toward his nose, which is called esotropia. Usually we treat esotropia using glasses to take the burden of focusing off the eyes so they can stay straight. As a child grows, sometimes a formerly esotropic eye will start to wander outward, which is called exotropia. This usually is treated by decreasing the power in the lenses so that the child can put forth some focusing effort. When we accommodate (focus at near) we converge our eyes, or bring them together, so the goal of allowing the child to do their own focusing sometimes causes them to converge, thus bringing the wandering eye to straight. This is what we're trying to accomplish with the atropine this time. Atropine temporarily paralyzes the accommodation in the better eye, thus causing the child to have to work even harder to focus. The hope is that Preston will bring his eye inward through this increased focusing effort.

Of course, as you know, the 3 above components are all very interrelated, and one problem can cause the others to occur.

Does that help?

Hope this lengthy message helps.
Diana D.

Saturday, May 16, 2009

Return to the Eye Doctor

Preston returns to the Eye Doctor

Preston has been a little anxious about this eye appointment. He asked me mom will I have to have eye surgery? Is the Doctor the boss or are you? I told Preston that our goal is not to have eye surgery that is why we have been working so hard towards patching! And if the Doctor really thinks that after all these years, that you need the surgery than that is something we will have to talk about. I assured him that since he has been eye patching his eye has gotten so much better and without patching he would have never reached this goal!
His doctor said that Preston has gotten a little bit better again! Preston was so happy to hear that! He said mom did you hear what she said? I said yes honey I am very proud of you! At that moment I could feel myself trying to swallow and not shed tears at that moment so she could finish saying what else was to come.
The Doctor says even though we have been lowering Preston’s prescription his weak eye has been turning out. She thinks if we use Atropine drops it might help his eye. I am not a big fan of these drops, we tried it for a year in Kindergarten and we did not see any difference. I was also worried about Preston being able to see the letters and just learning to read so we took him off of it. The Doctor says we will try only for six weeks and see if it makes any difference in that eye. I will put a drop of it in his left eye every other day. The Atropoine what that does is basically dilates the eye. I don’t want surgery so I am willing to try it for 6 weeks. We will have to see what kind of out come it is. Hoping for the best! I have faith in his Doctor. The Journey continues.

Monday, May 11, 2009

Rembering a very special person

I wanted to share something that I wrote about my mother years ago, and since it is mother's day I thought this would be a great time to share with you.

Rembering a very special person. A person with lot’s of love in her, who would say goodnight with a simile and awake with one that would brighten everyone’s day. She would comfort me with love, laugh and cry with me.

Day to day she grew weaker and never showed any pain, she smiled at me and said don’t be sad, it makes me sad. She suffered allot of her life and than the lord would not let her suffer anymore. She’s in Paradise where she belongs.

Even though I miss her so she’ll suffer no more! That special person is my mother.

Mom I miss you! Mom Te quero mucho!

Love your daughter,

A Comment from Maria

Carmen I lost my mom to breast cancer when I was 20. I thought I wanted to die beside her that life could not go on without her. Your words above are well written and touched my heart remembering those last moments with her. I feel her today guiding me through some of my toughest days. I need to get your info to my niece too. Her little 6 month old just got glasses. His pictures are so precious. I need to email them to you. Have the best mother's day."

A Comment from Michele

Carmen, that brought tears to my eyes! A few years back I did the 3 day - 60 mile walk for breast cancer and have done many other things for breast cancer over the years. Its amazing to know I'm doing a little bit of something for the pain they suffer."

Saturday, May 2, 2009

Lisa's Story About her son Nick

Lisa’s Story About her son Nick

"Hi Carmen- My son Nick was diagnosed with Amblyopia in K (age 6) last year. His vision in the amblyopic eye was 20/600. It was so profound that patching had to be a minimum of 8 hours a day. I was so proud the first day he showed up at school wearing his patch. He was nervous. We had a wonderful K teacher who let me explain to the class why and what was happening. She then used this opportunity to have each kid cover their eyes one at a time and try reading across the room. We have slowly tapered off and are on our first 8 weeks of NO patching.. YEA! However, we have also learned that patching does nothing for binocular vision (just monocular) and have begun vision therapy. We hope this therapy will restore some depth perception and binocular vision. This therapy is controversial.. And I tell people.. Vision therapy is for amblyopia as physical therapy is for stroke victims... No guarantee BUT we must still try!I am glad Jennifer put us in touch with each other...Lisa"

Our dog Beau

Our dog Beau
Preston's eye patch buddy

Preston and his eye Doctor

Preston and his eye Doctor
Eye Exam

Preston and Beau Eye Patching

Preston and Beau Eye Patching
Eye Patch Buddies